~Evynn Reese~

My daughter, Evynn Reese was born on 11/1/2010. At 10 months old she was diagnosed with a profound hearing loss in both ears. This blog documents her journey to hear. It includes ups, downs, testing, hearing aids, cochlear implants, therapy, school and everything else going on in our crazy but wonderful life! Evynn is such a strong, incredible little girl and we are so very proud of her!

Wednesday, October 31, 2012

Fall 2012

So much has been going on! We've been staying pretty busy and I need to catch up on my blogging!

Evy has been doing wonderful at school and her speech and vocabulary continues to expand! As she approaches her 2nd birthday (tomorrow) we anticipate that this will be a BIG year for her!

On 10/6/12 we participated in the St. Louis Walk4Hearing, which was a wonderful experience! Many of our generous friends and family members donated. Team Evy, on behalf of her school, raised $960 for a great cause! Many thanks to those who donated or joined us in the walk. Here's some pics!
We also recently took our yearly trip to the pumpkin patch, which was a ton of fun for us all! The only setback occurred shortly after arriving. We were taking pictures when all the sudden, my sister noticed that one of Evy's implants was missing! It had fallen off somewhere, so we began frantically searching and retracing our steps. Finally, after about 15 minutes and a small heart attack, I found it on the ground! Thank goodness! Evy usually tells us when something isn't right, or one falls off but she was so caught up in everything going on around her that she didn't stop to let us know. Minus that incident, we all had a great time!
In other news, we are currently in the middle of finding out the cause of Evy's hearing loss by seeing a geneticist. Although it won't change anything, it will give us piece of mind to know exactly what the cause is. Soon, we will hopefully be doing a blood test to get confirmation. We're hoping to get her blood drawn on November 14th, when Evy goes in for another surgery :(

Evy had not been feeling well lately, so after a trip to see her ENT, it was decided that she will need her tubes removed and have new ones put in. He said that after so many ear infections, the tubes can develop a film of bacteria on them, which causes infections more frequently. So this will be her third set of tubes... fingers crossed that we won't need another! The doctor will also take her adenoids out that day, since she will already be under anesthesia. He said that her adenoids just harbor bacteria, and again, only cause more frequent infections. Because of her implants, the adnoidectomy will be a little more difficult than usual. Normally, the ENT would use cauterization during the surgery, but cannot use it on Evy because it could cause her implants to stop working. The ENT will have to use special tools, which might cause her recovery to be a little rougher, but she's a strong girl and I know she'll do fine! This is her fourth time going under anesthesia in the past 15 months, which scares us a bit! Hopefully this is the LAST time and we can get Evy healthy!

Anyways, Evy had her school Halloween party today at Moog! She had so much fun trick or treating around the school and I really enjoyed watching her and all of her adorable friends collect candy! I'm sure she will enjoy tonight's trick or treating just as much! I can't wait to take them out!

Tomorrow is Evy's birthday! I can't believe that she turns two years old tomorrow! Over the last year she has changed from a baby to a beautiful, smart, amazing little girl! I am so proud of you Evynn Reese!

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